Children’s Hospices – HCR104fm
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Children’s Hospices

There are many good causes which appeal for our money and one of the most deserving ones sent representatives into our “Over to You” programme to talk about a fundraising initiative where they teamed up with the Huntingdon Racecourse to produce at the beginning of June. The East Anglia Children’s Hospice has currently 3 hospices in the East of England with a 4th in the process of completion. The hospice in Milton, Cambridge is our local contact where most terminally ill children will be referred from our area. We heard on our Tuesday OTY programme about Lucy, from our region who was a 12 year old who died at the hospice in May.

Lucy and her family had received support from EACH for 10 years after she was diagnosed with Lennox-Gastaut Syndrome, a rare and severe type of epilepsy, had global developmental delay and was registered blind. She suffered a seizure at 12 weeks old, initially thought to have been brought on by a temperature, but after another 14 in 24 hours she was diagnosed with epilepsy. The specific type was identified a year later following a series of further seizures. She and her family were introduced to EACH and Lucy went on to benefit from hydrotherapy, music therapy and short breaks in Milton, giving her parents, sister Katie, 14, and twin brother Liam, some much-needed respite.

The family were keen to give something back to the hospice and took part en masse in the sponsored inflatable Colour Dash at Huntingdon Racecourse. The event raised £20,000 for the hospices.

Polly West, the EACH fundraiser, told our listeners that it cost £5,600 per day to keep each unit running. She spoke of a new venture for them – “EACH Fest” which again is to be held on the racecourse and is a music festival featuring  some of Britain’s top tribute bands:  Bjorn Again, Supreme Queen and the Rolling Stones Now. The event is to take place over the August Bank Holiday weekend on Saturday 25th August. Ticket prices start at £27 for adults and £16 for children – under 4’s are free.

If you would like to go visit the EACH website on www.each.org.uk